Update on Sam

It's been a little while since I last wrote about how Sam is doing, so I thought I'd fill you in...  Overall, she is doing really, really, really well.  We upped her vitamins and cut preschool down to 2 days a week instead of 4.  Which has made a HUGE difference.  I described it to one of her teachers as Sam being a cell phone and she was using 80% of her battery up at school and then only had 15% for the rest of the time.  Almost immediately after cutting back, we saw great improvements in her energy, her joy and her sleeping less.  She is happy and has more energy than we've seen in months.  It's awesome.

Not so awesome, are her stomach issues.  This picture is how she is when her tummy hurts.  Which is a lot of the time.  We had her re-Xrayed after keeping her at high doses of Miralax and she is still impacted, up high in her intestines.  She'll have days where she can't eat because her tummy feels full and hurts.  So she lays on the couch (or her mom or dad).  

 We've upped her Miralax even more and it's hard to tell if it's working any better or not, but we have an appointment to see a GI specialist up at Seattle Children's.  Hopefully we can figure out something soon.  She's so sweet and it is so hard to not be able to help her.

 But like I said, overall, she's doing great.  The best in a really long time.  I'll take it. =)