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Friday, June 25, 2010

I'm lame...

And I know it. I'm off today to Washington D.C. until Wednesday and then Thursday or Friday we leave for the cabins for two full weeks. I have a bunch of pictures and posts to do, and no time. Looks like you'll get inundated when I get home in three weeks... Until then, enjoy your summer! :)

Friday, June 18, 2010

Egg Salad Anyone?

So. I have this spot in the fridge where I keep boiled eggs. Then anyone can grab one for a quick snack. Tom grabbed a couple of eggs on his way to work and tossed them on the front seat of his car. One rolled off, landed on the floor. Whatever. He got hungry and decided to peel his boiled eggs. Oops. Did I forget to tell him they weren't boiled? I just needed some more space in fridge for RAW eggs? Apparently there was quite a mess on his desk. I don't know how they didn't break before, since he wasn't being the littlest bit careful with them. I laughed until I cried when he called me from work. He thought I'd pranked him and I kind of wish I'd thought of it....

Wednesday, June 09, 2010

Update on Sam...

This time it's great news! In the past couple of weeks Sam has had a sedation MRI and then an eye appointment with a pediatric opthamologist that specializes in the "mito kids" at Seattle Children's. The MRI went great. So much smoother than her first one. It was amazing. She didn't cry a single time and they were smart enough to knock her out first and then do her IV (her circulation is still poor, so it takes a LOT of sticks to get an IV in this girl). They also took it out before she woke up. As far as Sam knew, she'd just had a really great nap in awesome pajamas!
The eye appointment also went great. This doctor sees all of the kids with Mitochondrial Disease at Children's so he knows all about the labs and muscle biopsy results. He kept saying he couldn't believe that Sam was the same baby he was reading about in the labs and results. She looks so much better in person than he was expecting. He called her "robust"! First time that word's been applied to Sam! Her eyes are perfectly normal. Which is good news. In the past she's run into walls and not responded to visual stimuli, so it's good to know it's all a matter of energy.
We feel so blessed. I cannot go to Children's and leave without thanking my Heavenly Father for my own problems. So many people have it so much worse. I'm thankful for a husband that was willing to listen to the Spirit and stay in the Seattle area, when he really, really, REALLY wanted to move to Idaho. We are where we should be. We need to be here and the care Sam is getting is amazing. And I just can't get enough of this girl...

She's just one of the girls. And the twins are figuring out this whole energy deal. Whenever they want a treat and the answer is no, this is what I hear - "But you know mom, I'm feeling kind of low energy..." :)

Sunday, June 06, 2010

Sharing

I have apparently taught my girls too well the art of sharing... Our new house has five bedrooms. Five. All three of the big girls have been sleeping in one bed. One. This is how comfy it looks...

Or the twins will just sleep on the floor so they can all be together. Ridiculous. So we have moved both bunkbeds into Brooke's room and all the dressers (and Sam) into the twin's room. Everyone is required to sleep in their own bed and I now have my craft room with no baby living in it. Weird how much better the girls are sleeping...