This time it's great news! In the past couple of weeks Sam has had a sedation MRI and then an eye appointment with a pediatric opthamologist that specializes in the "mito kids" at Seattle Children's. The MRI went great. So much smoother than her first one. It was amazing. She didn't cry a single time and they were smart enough to knock her out first and then do her IV (her circulation is still poor, so it takes a LOT of sticks to get an IV in this girl). They also took it out before she woke up. As far as Sam knew, she'd just had a really great nap in awesome pajamas!
The eye appointment also went great. This doctor sees all of the kids with Mitochondrial Disease at Children's so he knows all about the labs and muscle biopsy results. He kept saying he couldn't believe that Sam was the same baby he was reading about in the labs and results. She looks so much better in person than he was expecting. He called her "robust"! First time that word's been applied to Sam! Her eyes are perfectly normal. Which is good news. In the past she's run into walls and not responded to visual stimuli, so it's good to know it's all a matter of energy.
We feel so blessed. I cannot go to Children's and leave without thanking my Heavenly Father for my own problems. So many people have it so much worse. I'm thankful for a husband that was willing to listen to the Spirit and stay in the Seattle area, when he really, really, REALLY wanted to move to Idaho. We are where we should be. We need to be here and the care Sam is getting is amazing. And I just can't get enough of this girl...
She's just one of the girls. And the twins are figuring out this whole energy deal. Whenever they want a treat and the answer is no, this is what I hear - "But you know mom, I'm feeling kind of low energy..." :)